Hello again.
I had the exciting privilege of meeting the one and only Nancy Peterson last week. Nancy is the nurse who started the whole "endometriosis treatment program" here in Bend many years ago. She had endo herself, and because of that, she had a passion for the patients, a special understanding of what they're going through, and I think she stimulated Dr Redwine to continue his quest for conquering the evil disease. Nancy still has a passion for curing endometriosis, and answers quite a few emails every day from women who don't know where to turn. I applaud her efforts to educate and encourage those who are in pain and looking for a better way than is often offered them. Speaking of a better way, we operated on a lady last week who had been to "experts" in several locations around the country in search of someone to rid her of her rectal nodule. One told her it "couldn't be done" because it was in the wrong location, one tried but gave up because "it was too low", and others put her on Lupron (which didn't do anything). We went to war against the forces of evil invading her body, and, at the end of the day (literally), we prevailed, with the villainous nodule in the pathologist's bucket. (do I sound too much like George Bush? I apologize...) It was the largest nodule I've removed, and was quite an exciting surgery. I finally have experienced firsthand the difficulty of this type of surgery, because David makes it look so darn easy, and it's not. Endometriosis is not a disease for the faint of heart, neither for the patient nor physician, but it is incredibly rewarding when you can tell an anxious, fearful patient (fearful because so many others have failed at excising her disease) that she will no longer have the one pain that has ruled her life for the last 10 - 15 years. I think I'm making great strides toward where I need to be in order to continue this work after Dr. Redwine retires. It's exciting and exhausting at the same time, but the joy from taking care of people who need you easily overwhelms the difficulty. March is Endometriosis month, and I encourage you to tell your friends with painful periods, painful sex, or painful bowel movements to get treated, and not give up. I will be doing free record reviews, so if anyone would like me to review their files, contact Kate or Deena in our office.
Take care, and have a great week.
Dr. Mos
Friday, February 02, 2007
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3 comments:
I have been reading your blog since you began with Dr. Redwine. I have been a long-suffering Endo patient since age 16 without a correct diagnosis until 2003. Endo has literally taken over every aspect of my life and I am waiting and hoping for the day I can come to take all the pain away! (I am in the process of fighting my health care insurance right now).
Thank you for your passion to make the lives of women better.
Hey I just found your blog and LOVE it. You seem to care so much about your patients. I think I have endo but none was seen at my lap in October. The dr put in the preop hist - endometriosis , my lap was for to diagnose it then post op history was endometriosis and lysis of adhesions. My dr said he went through my pelvic cavity 5 times (and I believe him, he said he even tried shing the light at different angles to see if he could find clear endo and he described to me the different colors it comes in) but he didn't see any. He did find my left ovary and tube attached to my bowel and peritineum wall with adhesions (they were flimsy). He took down the adhesions. My question to him was how did I get the adhesions. I have never had a csection. I did have an emergency d&c in July 05 for retained poc. He said he wasn't sure. My symptoms started in Jul/Aug 04. Got pregnant in Oct 04, delivered June 05. My symptoms became dramatically worse after the baby was worse. I had excruciating right side pelvic and back pain, vomiting, really heavy periods and bleeding all the time even while on BCP, and really bad cramps.
After the lap (Oct 06), I felt immediately better. The pressure and pain were gone. However that has slowly come back. It is manageable with 800mg of Motrin now. The last time at the ER before the surgery, they had to give me Nubain for pain relief. Right now I am on Loestrin FE continuously and Prometrium days 12-21 of the bcp pack. I have not had any bleeding since 11/08/2006. I know that I can't continue this regimen forever (makes getting pregnant difficult being on the bcp).
My question is what should my next step be. Right now I am stable and able to deal with what is going on. I prefer not to do another surgery right now. How did I get the adhesions (they were not biopsied) and do you think endometriosis caused it? I never had problems before 2004 and I am 32. I have two children 7 and 1. Thanks!! Love your blog. I will keep reading.
I'm glad that you had the chance to visit with Nurse Nancy. She's an amazing resource to those of us who go on the ERC's "Yahoo" Group and she's been a huge help to those of us who were too sick to take it any longer.
I live in Boston, the "capital" of the medical community (hah, hah!!), and the only things the "experts" there advised me to do was "BEND OVER" so that they could inject Lupron into me. They were perfectly content to drag out my pain and suffering but I was not.
I did some research on the ERC board to look for what technique or which doctor would offer me the most promising chance of recovery and it was soon very clear, based on things Nancy and others wrote, that EXCISION of endometriosis would offer me the best chance of getting my life back.
I would have seen Dr. R. in Oregon, if necessary, but I am lucky enough to live near Dr. R. in Maine, who collaborated with Dr. Redwine on a surgical text book and who's also trained with him.
YOU EXCISION SPECIALISTS ARE OUR ONLY HOPE.
Thanks a lot for being willing to do whatever you have to do in order to carry the torch and I hope that there are others like you, out there, who are willing to learn about what works.
Please keep up all of your hard work, and encourage other doctors to join you in it, if possible. We need as many of you as we can get.
Thanks
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